Welcome to our website

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To quench your curiosity for our newly established foundation we posted pictures from our latest programs as well as some information about our foundation.

I cannot tell you how blessed we are to receive support from not only colleagues at work, but also the community members who want to work hand-in-hand with us to bring smiles to these sick children.

Other organizations and media shower blessings to particular children with rare disease and make him or her a star just because the family is well connected or know someone with high social standing. We believe that every child with any types of medical challenges is a “STAR” for us. We stand up for children whose parents are illiterate and have no Internet access to voice their needs, as well as those who have nowhere else to turn for help.

Moreover, our foundation is one of only few health foundations in Indonesia that is born and active within the hospital walls itself.  Many foundations are set up from the outside  to reach inside, and not necessarily have clear direction of which kids are in need and where a difference can be made.  Our foundation is however managed by pediatric residents who take care of the children and know  what the needs are and how to address them.   For example, when residents encounter children whose parents cannot afford for the required treatment, they will directly contact us and help-at-hand is delivered accordingly.

MAIN cares not only for physical health, but also recognizes the need for a child’s heart to still be a child in the face of medical trauma. MAIN’s motto “Let them shine” can speak for itself recently when a small community group worked hand-in-hand with us to set up a puppet-show in the inpatient ward.  A scene of enthusiastic children grew, filling chairs and rolling out of their isolated rooms on wheelchairs and beds, with parents of the sick joining at their side.  Among those happy faces one boy captured our attention.

He is 13 years old and has rheumatic heart disease and heart failure (a condition in which permanent damage to heart valves is caused by rheumatic fever after streptococcal infection). He sat in a wheelchair and waited patiently for the puppeteers preparing for the show. Suddenly he stood up, escorted by a nurse and his mother extra-slowly back to his room. I asked if he was fine, and if he needed help. He looked pale and short of breath. I advised him to rest in his room. To my surprise, he asked his mother to push him out on his bed, and asked the nurse to find mobile oxygen so he could watch the show.

Later on, the boy, equipped with oxygen and on a bulky bed, entered the gathering space and joined the other kids singing, laughing and listening closely to the story. He passed away only few days after the puppet show.        I remember clearly his smile shining, with oxygen fed through the nasal cannula and his determination to follow the program.  Each kid, as sick as they may be, still longs to be a kid – even in a hospital, even in the face of life threatening medical challenges.  Giving sick kids a chance to smile and laugh together makes them feel special again, stirring healing hope in their heart.  Not only their health counts, but moments of joy, smiles and laughs are equally precious to their family and care takers.

The laughter that filled the ward that afternoon made it apparent that even kids in a hospital are still just kids.  And more than any other patients, children have a unique capacity for hope and enthusiasm in the face of medical challenges.  They simply need an opportunity to let that enthusiasm shine.

That afternoon I observed through tears of joy the radiant smiles on the faces of the children, and was grateful for all who made the event possible by their contributions.

We thank you once again for your generosity to let them shine.

 

Mirari Judio